THE FAMILY of a four-year-old girl trapped in her own body needs £10,000 to buy a state-of-the-art machine that could transform her life.

Georgiana Sharp’s mum Kelly Sharp is hoping wellwishers will back their fundraising campaign to buy an eye-gaze machine which would help her daughter make herself heard. The family from Prince Street, Haworth, are planning a yearlong of events including running half marathons and a toddler toddle.

It was just one week before Georgiana’s second birthday when a blood test at Airedale Hospital revealed the tot had Rett Syndrome.

The syndrome means Georgiana, who is in a wheelchair and has an older brother Mackenzie, 16, sister Gabrielle, 10, and an eight-month-old brother Raphael, is missing a chromosome that is vitally important in the development of communication and physical skills.

She cannot speak at all and cannot use sign language because she has no control of her hands - she is locked in.

Mum Kelly, 37, said: “It means that she can’t tell us anything. She is locked in. It’s extremely frustrating for her as well as dangerous because she can’t tell us when she is in pain.”

As well as having Rett Syndrome, which is the second most common disability in girls after Down Syndrome, Georgiana, who goes to Phoenix School in Keighley, also has epileptic seizures but she has no way of warning her family when she is feeling unwell.

“But there is a solution! An electronic eye-gaze machine would help her to communicate and also have some control over her life- from what she listens to on the radio and watches on television to allowing her to let someone know she needs the toilet: all massive things for her.

“The eye-gaze machine would really transform her life. The eye gaze programme and computer costs approximately £10,000 and that’s why we’re embarking on a year of fund raising. Our beautiful, funny, charming little girl is adored by everyone who knows her and we would love to provide her with the opportunity to gain some independence,” added Mrs Sharp.

Georgiana was born premature but at 15-months still was not babbling like a baby, making a noise or moving round. “I knew in my heart there was something wrong but everyone told me she was fine. Eventually getting a diagnosis was a relief in a strange way. There might be other families who need to hear about Rett Syndrome, people don’t know about it enough and telling our story might help someone get a quicker diagnosis.”

To help Georgiana get her eye-gaze machine go to justgiving.com/crowdfunding/georgieseyegaze